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NHS Continuing Healthcare (CHC) for Children

Caring for a child with complex medical needs can be overwhelming, and finding the right support can feel like an uphill battle. NHS Continuing Healthcare (CHC) is there to help — providing funding to cover the care your child needs, at no cost to you. It’s designed for children whose health needs are complex, unpredictable, or life-limiting. In this post, we’ll guide you through what CHC is, who might be eligible, and how to apply, so you can feel supported and empowered every step of the way.

There is a simpler version of the document here provided by Access Social Care.

Who is this for?

If your child has a disability or life-limiting condition and needs lots of health and medical care, they might be eligible for NHS Continuing Healthcare (CHC). This is NHS funding to pay for the care your child needs.

Important: You do not pay anything for CHC, and it does not affect benefits.

A need that is related to a condition or impairment can either be a:

  • social care need
  • health need

CHC is for children whose main care needs are health-related. Social care only covers general support, but CHC covers medical or health needs.

What is a Primary Health Need?

Your child may qualify if their medical needs are:

  • Complex or severe
  • Involve several healthcare professionals
  • Unpredictable or not fully managed
  • Likely to get worse without support

This may include children who need:

  • Breathing support or a ventilator
  • Feeding tubes
  • Continence care
  • IV medication
  • Support for emotional or mental health needs
How to Apply

You can ask for a CHC assessment through:

  • Your child’s social worker
  • A healthcare professional
  • Your local Integrated Care Board (ICB)

You can use this Word template to request an assessment for CHC provded by  Access Social Care.

The assessment usually has two steps:

  1. Checklist – a professional looks at your child’s health needs
  2. Full Assessment – a detailed evaluation if the checklist shows your child may qualify

Some children can go straight to the full assessment if their needs are urgent.

Fast-Track Assessments

If your child’s condition is getting worse quickly or is terminal, they may qualify for a fast-track assessment to get support faster.

Personal Health Budgets

If your child gets CHC, you may get a personal health budget. This lets you have more control over care, for things like:

  • A personal assistant (PA)
  • Specialist equipment
  • Respite care
  • Activities or therapies that meet medical needs

Reviews usually happen 3 months after CHC starts and then every year, or sooner if your child’s needs change.

Getting Help

Independent advocates can help families:

  • Understand the CHC process
  • Prepare evidence of your child’s needs
  • Support you in meetings

They do not make decisions for you but ensure your child’s voice is heard.

What If You Disagree?

If your child is not eligible or you disagree with the care plan, you can:

  • Ask for a review
  • Request a fast-track assessment if needs worsen
  • Ask your ICB for help to appeal decisions

 

Remember, you don’t have to navigate this journey alone. The Little Miracles Family Support Team is here to guide and support you every step of the way. If you have questions, need advice, or just want someone to talk to about your child’s needs, please don’t hesitate to reach out. You can get in touch anytime by completing the form below — we’re here for you.

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